Pridružite se nam na konferenci CTNNB1 Connect and Cure 2025 v bližini Bostona, Massachusetts! Ker naša skupina pacientov in skupnost raste, smo navdušeni, da lahko ponudimo dva dni predstavitev. Petek, […]
🏈🎉 SHINDIG FOR SHREVE: TOUCHDOWNS FOR A CURE 🎉🏈 🗓 Saturday, September 13 | 11:30 AM – 4:00 PM 📍 Paradise Event Space 📍 24821 Commercial Ave, Unit 1, Orange Beach, AL 🎟 $85/adults, $15/children 🎉 […]
DRAGONFLY STUDY:Prospective longitudinal, observational, natural history study of children with CTNNB1 neurodevelopmental syndrome We are working on a project to learn more about CTNNB1 syndrome by gathering data from standard […]
Del 28 al 30 de noviembre, el Centro de Referencia Estatal de Atención a Personas con Enfermedades Raras y sus Familias (Creer), del Imserso en Burgos, acogerá la celebración del […]
CTNNB1 Foundation je pravkar objavila datume in lokacijo konference v prihodnjem letu! Mednarodna konferenca o sindromu CTNNB1 2026 bo potekala v Barceloni, Španija, od 18.–19. junija 2026 v hotelu SB […]
